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Robert is the father of Chace Elijah a thriving, energetic 4 year old boy who happened to be born with a congenital heart defect called Tetralogy of Fallot. The condition is a combination of four heart defects present at birth. Robert shares the experience of learning about Chace’s condition when he was born, the process he went through to be strong for him and how he turned to the internet for information and support.
He now shares his life with Chace on social media connecting with others around the world to support them with their own new diagnosis as well as to be an example of how a child can thrive even under these conditions. His sincere love for his child and compassion for others shows in all he does.
Be sure to listen to the end to hear this sweet little guy sign off!
After our recording I mentioned I heard a little mic noise in the last half, thinking it was hitting his collar. Nope. Even better! He and Chace were playing catch the whole second half!!! Go Chace!
Where to find Robert & Chace:
The feeding tube video – Dad & Son sharing the journey
Guest call!!!
Are you following a passion in your life? Interested in joining the collection of glistening particles and sharing your story? Or have a friend to recommend? Awesome!!! Come and tell me!!
And the latest…
It’s so exciting how extrarodinary people keep showing up and telling their stories. I’m excited to share the latest news with you — a spark of light to your inbox — and I promise to keep it simple and reasonable (even though it’s hard to contain my excitement!!!) Wow. That was ‘excite’ three times in one paragraph. You get it though, right? Enthusiasm is in my veins. Always. Be sure to hop over to the website and share your email to get the latest dose of excitement! Yes, I said it again.
Podcast consulting
Ok. Did it find you? The whisper inside to do a podcast? I get it and I’d love to help you realize your dream of sharing your voice. Check it out here.
